Tuesday, December 20, 2011

Hurry Up and...Wait

In Bible Study last month, we reviewed Galatians 5:22:  The Fruits of The Holy Spirit.  I guess these are seven ways were are supposed to honor God through good living.  They are love, joy, peace, patience, kindness, goodness, faithfulness.  We were asked to pick the one that is hardest for us to fulfill.  For me, it's patience.

I hate waiting, especially when I have no control on how to speed up the waiting process.  I am currently waiting to hear about when I can start my new job.  I am waiting to heal and "get better".  Waiting to meet my new urologist.  I think this is why I detest flying to my destination.  Well, I suppose there are several reasons to hate flying:  waiting at the airport, waiting on the plane, security checks, sitting next to someone with a nasty head cold that you know you will now develop once you reach your vacation destination.  Airport food poisoning (I had that once; it wasn't cool).  At least when you are driving, you feel like you are constantly making progress; unless you hit a traffic jam.  I had a boyfriend once who told me that I needed to work on my impatience.  He actually had the nerve to state, "Patience is a virtue".  That relationship did not last long past that moment.

Anyway, I will actually strive to work on this fruit.
             Josie

The Numbers:  December 17, 2011:  Food:  Breakfast:  Wheat Chex cereal and coconut milk.  Lunch:  Arnold's Honey Wheat bread and Jiff creamy peanut butter, red grapes.  Candy.  Snack:  Farmer's Market chocolate chip cookies (yum!).  Dinner:  Venison, olive oil, sea salt, pear, carrot, celery.  Publix French bread.  I Can't Believe it's Not Butter.  Dessert:  What Chex and coconut milk.
Medications:  pyridium TID, amitriptyline SID, Zyrtec SID, Cosamin, Fish Oil
Pain:  Much improved from yesterday.  Mild discomfort (bladder 3) on drive to visit my sister after 6pm. 

December 18, 2011:  Food:  Breakfast:  Wheat Chex, coconut milk.  Snack:  Dunkin Donuts blueberry donut.  Lunch:  Arnold's Honey Wheat Bread, Jiff Creamy Peanut Butter, pear, corn chips.  Dinner:  The Original Pancake House 3 pigs in a blanket (sausage in a buttermilk pancake, YUM!), hot syrup, real butter.  Pumpkin Creape. 
Medications:  pyridium TID, amitriptyline SID, Zyrtec SID, Cosamin, Fish Oil, 2 Advil 3pm.
Pain:  Significant lower abdomen pain (bladder? Uterus?) after 3 pm, until about 7 pm (4-5).  TENS and Advil seemed to help.

December 19, 2011:  Food:  Break fast:  venison, pear, olive oil, sea salt, carrots, celery.  Snack:  Salted pretzel at the zoo.  Lunch:  Backyard Burger with American Cheese, mustard, lettuce.  Seasoned fries, mayo (my first "fast food").  Snack:  Chick-Fil-A brownie with nuts (walnuts?) and icedream (my second fast food) - with Prelief.  Dinner:  Greenbean casserole (chicken broth, greenbeans, cheddar cheese, cream of mushroom soup) and Supreme DiGiorno pizza.  I think I was really into tempting a repeat of the pain after eating at my favorite pizza place on Tuesday.  I'm sick of "forbidden food".  This has been going on for a year now....there is that lack-of-patience-thing again.
Medications:  pyridium TID, amitriptyline SID, Zyrtec SID, Cosamin, Fish Oil, 2 Advil at 11 am.
Pain:  Not a bad day, really.  Did have that lower abdominal pain in morning (still unsure if bladder or uterus) at about a 3.  Advil seemed to help.  After PT at 2:00 pm, I did have vulvadynia ache/burn into the evening (3) - Zumba helped.

Saturday, December 17, 2011

Ick!

I have no patience for anything this morning.  No patience for my dog, who wants to lift his leg up on every mailbox we pass on our walk.  No patience for my husband, who is scrambling online, as I write this, to try to order last minute Christmas presents for his family, when I have spent the last 3 weeks suggesting ideas that I guess weren't good enough to order ahead of time.  Most of all, I have no patience for my current ObGyn, who has decided (after 3 months of treatment) that maybe she isn't the best doctor to fix my bladder pain and wants me to see a 3rd urologist.  For this record, the urologist she recommended works in her hospital and his special interest is oncology concerning the prostate.  Somehow, I don't think that he is going to have the most up-to-date information on female, hormonal bladder pain and incontinence.  Honestly, I just feel hurt.  I did some calling around, and I have referred myself to a different urologist who works for a local large medical university and treats only female patients with bladder voiding issues and pain.  I'm really not a bad patient; it's just that this has been going on for a year, and I am sick of it.  I will stop blogging now, and I'm sure this is no fun for you to read.  I'm really only here to update my stats.
              Josie

The Numbers:  December 14, 2011.  Food:  Breakfast:  Wheat chex and coconut milk.  Lunch:  Brown rice, olive oil, sea salt, spinach, pork, Havarti cheese, avocado, red grapes, mint Oreos, Christmas cookies.  Dinner:  venison, sea salt, olive oil, carrots, celery, pear, Trader Joe's pretzel roll, I Can't Believe it's Not Butter, one slice Trader Joe's pork sausage (gross!  Not good!), crab dip, corn chips.
Medications:  Pyridium TID, Zyrtec SID, amitriptyline SID, Cosamin, Fish Oil (down to BID, because I think it was causing intestinal cramping at TID).  One Advil at the start of the morning.
Pain:  I think uterine cramping (3-4) - as would be normal due to my cycle and the reason for the Advil.  In general, I felt like I had to urinate a little more often but it wasn't painful.

December 15, 2011.  Food:  Breakfast:  Wheat chex and coconut milk.  Lunch:  Vension, olive oil, carrots, celery, pear, sea salt, red grapes.  My friend's almond bark candies (almond bark, Rice Krispies, marsh mellow goodness).  Dinner:  Trivia night pizza place:  4 cheese pizza and marinara sauce (big test meal).  This meal was my first one "out" in several weeks, and it seemed salty, although my husband did not notice.  I drank lots of water.   I'm sure I had a Mint Oreo during the day.
Medications:  pyridium TID, Zyrtec SID, amitriptyline SID, Cosamin.  Stopped Fish Oil due to GI issues.
Pain:  Great day!  I wore jeans!  Vulvodynia was a 3 after several hours in jeans, but resolved soon.  One mild bladder flare-up for about 1 hour (pain of 3) after "holding".

December 16, 2011.  Food:  Breakfast:  Wheat chex and coconut milk.  Lunch:  Local 5 ingredient salad place.  My salad was:  Romaine lettuce, carrots, olives, cucumber, corn chips, egg, fat free Italian dressing on the side (dipped something like 3 times).  Dessert:  Cookie Company chocolate chip cookie.  Snack:  Almond Bark candy, Arnold's Honey Wheat bread and Jiff Creamy Peanut Butter.  Dinner:  Oatmeal.  Dessert:  Mint Oreos.
Medications:  pyridium 2 in AM, then 1 in afternoon, and 1 in PM.  Zyrtec SID, amitriptyline SID, 2, Advil at 10 am, Flexeril at 2pm, TENS throughout the day, with ice/heat pad, Cosamin (1/2 dose, as running out and my order is late) and Fish oil started BID at afternoon dose.
Pain:  I think you can tell by the above entry that I was painful.  First, in AM, badder pain was a 1-2.  Then, became stressed about the doctor issues (listed above), and with next urination, bladder pain went to 5, with urethral pain at a 3.  Had present lunch with friends, came home, and bladder pain went up to a 7.  Vulvodynia was absent to a 2 all day (the 2 during the worst of bladder pain).  Mood a 5-7 all day - high depression and anxiety.  At 7pm, felt improved enough for aerobic exercise, then bladder pain down to 2-3 for the evening.
So, back to the old, frustrating as Hell questions:  was this pain flare do to the food,  (4 cheeses?  marinara sauce?  sodium level?) , stress (having to "refer" myself again and hurt feelings), or hormone (Day 4, when Day 5-8 has been known to cause trouble?)?   I guess no way to know for sure at this point, so I just keep tracking the trends.

Wednesday, December 14, 2011

My Name Is, What?

Ok.  I'll level with you.  My name is not really Josie.  Obviously, when I started this blog, I did not want everyone locally to begin to ID me.  Especially, if I was going to tell job-relates stories or talk about my medical issues.  In retrospect, this seems to be silly, as the only people "reading" this blog appear to be in Russia, and I think that these are just random search engine hits.  Anyway, for all you search engines, here is a random story just for you:

Several years back, I was completing my senior rotations in veterinary school.  One patient was a large Rottweiler named "Josie" that had a large bone fragment in her elbow that made her lame.  She came in on the start of my block, and she was quite memorable for a few different reasons.  First, she had a lovely personality and was a great dog.  Second, she broke out with the worst diarrhea I had ever seen (and I used to work quite heavily with puppies sick from Parvovirus infections) overnight in the kennel and ended up testing positive for having a massive giardia infection.  Next, this information was used to diagnose the owner with a giardia infection also; the owner had been sick for weeks, lost 15 lbs, her doctors could not figure out why she was sick, and she and the dog both swam in the same contaminated pond.  But, there is even one other story that still makes this patient stick out in my mind:

A senior block usually lasts between 3 and 4 weeks.  Every morning starts with the surgeon and his/her resident walking with their veterinary students through the kennel to conduct rounds on patients.  There are usually about 6 or 7 students per block.  Anyway, in the morning, the exhausted students sometimes say very little, resulting in the surgeon "calling on" the student by name to answer the questions.  Somewhere into week two, the surgeon would ask his questions and then randomly call on "Josie" to answer it.  The dog "Josie" has been long gone.  The students (male and female) stare at each other, in silence.  Finally, the surgeon calls-on someone else, and the day continues.  About a week later, "Josie" gets called on again. After the same, long pause of quiet, I answer it.  To my shock, the surgeon accepts the answer and the discussion moves forward.  It was at this moment that everyone starts to realize that he thinks my name is "Josie".  I realize, to my horror, that my surgeon must think that I am the dumbest student in the block, for not only do I not answer his questions, I do not even respond to his voice.  The students find this hilarious.  Fortunately, the resident later ran to the surgeon to tell him his mistake.  I receive a great apology and a A in the block.  Crisis averted.  However, sometimes, I do still get called "Josie" by my classmates.

                     Josie

The Numbers:  December 13, 2011.  Food:  Breakfast: Trader Joe's Oatmeal cereal and coconut milk.  Lunch:  Arnold's Honey Wheat Bread, Jiff creamy peanut butter, sweet potato, olive oil, sea salt, I Can't Believe it's Not Butter (we ran out of Land O' Lakes).  Snack:  pear, red grapes (new food!)  Christmas cookies.  Dinner:  pork, brown rice, spinach, yellow squash (new) olive oil, sea salt, fresh avocado, slice of Whole Foods Havarti Dill cheese.  Dessert:  sour cream based cupcake, Mint Oreo's, Walmart brand vanilla wafers.
Medications:  pyridium TID, amitriptyline SID, Zyrtec SID, Cosamin, Free Fatty Acids.  Advil (2) in AM for cramping.

Pain:  Cystitis/urethritis about a 3-4 all day.  Vulvodynia about a 3.  Difficult to assess, as uterine cramping/abdominal bloating/GI bloating/colitis may be cause for discomfort.  I know this looks icky on paper, but this was not a bad day.  Mood was very good, and I could be productive.  Did not use TENS.

Tuesday, December 13, 2011

The Case of the Stinky Dog

My husband and I don't have any children.  I never felt "ready" for them until about a year ago.  Unfortunately, that is exactly when all my medical issues started, forcing us to delay any efforts towards procreation.  That places our poor little dog (a 20 lb, white fluffy mutt) into being our "kid".  He is an "only dog" (I know, very rare for a veterinarian to have only 1 pet), and he has been known to be a little bit of a brat sometimes.  I think it's similar to how a preacher can sometimes have the worst behaved kids in the church.

Anyway, we have a fenced-in yard.  The weather has been lovely recently (mid-60's), so our dog has been getting plenty of opportunity to enjoy the outdoors.  On Thursday, I let him play outside while I knitted in the living room.  I left the main door open with just the screen in place.  Suddenly, I smelled something wretched.  It was just terrible; like something died.  I looked up to see my dog grinning at me outside the screened door.  I smelled him; I gagged.  Yes, the stink was coming from him.  Immediately, I gave him a bath (which he hates).  Looking outside, I could not find the source of the odor.  That night, I tried to describe to my husband the extent of the horrible smell.  My husband did not look impressed.

Friday, I was smarter.  I put the dog outside and watched.  Sure enough, beside the large tree in our back yard, he starts rolling on the ground.  Again, I can smell him before I even get close to him.  Under the dog, I find a seriously decomposing rat.  That night, my husband was greeted by me holding the rat up to his face.  "Smell this!"  I instructed, "and tell me that it is horrible!"  My husband does one better:  he goes outside and finds a second rat, also by the tree and even more putrid than the first one.

Now, this is when I start to get worried.  Two dead rats.  Why is this happening?  Our dog cannot catch a piece of popcorn thrown in the air; we seriously have difficulty believing that he is skilled enough to hunt rats, even if he is a terrier mix.  My husband starts assessing and digging into the ground, thinking that maybe there is a system of tunnels running under our constantly wet back yard.  I worry that if my uncoordinated dog is catching mice, maybe they are disabled in some way, such as from ingesting rat poison.  This is a scary idea.  Many people do not know this, but many rodenticides are highly toxic to pets.  One form prevents the clotting of blood.  I have seen little dogs bleed to death (in the vomit, into the lungs, out the colon) from ingesting this toxin.  Furthermore, most of these are delayed-acting, in order to ensure that all rats eat the bait.  (The smart rat would avoid the rodenticide if it noted all of its buddies lying in a dead pile next to the rat bait, if the toxicity were fast acting).  In theory, my dog could be finding rats slowed by rodenticide, eat them over a period of 2 weeks, and then start to show clinical signs of the toxicity and die later.  My dog was carted to one of my vet clinics and his clotting times were checked.  All normal.

Three days later, and I am preparing to take the dog in to the clinic to have follow-up laboratory work to continue to check his blood clotting values.  My husband gives me a call from work.  "Maybe," he says, "we should be looking up..."  I walk outside to the spot where the dead rats were found and "look up".  Sure enough, a giant bird nest sits in the tree, directly over where the dead rats were found.  Yes, my dog is a stink rolling opportunistic.  No rat poison concerns.

                    Josie

The Numbers:  December 12, 2011.  Food:  Breakfast:  Trader Joe's Oatmeal Cereal and coconut milk.  Snack:  Carrots.  Lunch:  Arnold's Honey Wheat Bread and peanut butter.  Snack:  Christmas Cookies.  Dinner:  Oatmeal, blue berries (new food!).  Dessert:  Mint Oreos, Vanilla Wafers, carrots.  Sour cream based cupcake.
Medications:  Pyridium TID, Amitriptyline SID, Zyrtec SID, Cosamin, Free Fatty Acids, 2 Advil at 9 pm
Pain:  Today would be Day 1 of cycle, although it seems to be "struggling".  Bladder/urethra a 2-3 all day, a 4 (from 9-11pm, Advil and TENS seemed to help.  Vulvodynia about a 2.

Sunday, December 11, 2011

Leaving Town...Maybe

My sister works retail at a large chain department store.  As I am sure you can guess, she is very busy this time of year.  Amazingly, she has two days off in a row this week.  So, I have this plan to leave home Monday, commute to physical therapy, and then keep heading out to see my sister for Tuesday/Wednesday.  It should be fun.  Of course, I'm having the all "high-and-mighty" attitude about the importance of properly using the elimination diet.  This makes me the largest hypocrite, because I basically poured gasoline on the diet trial and turned a flame thrower on it.   Then, I announced that I could do this because I'm writing a "detailed journal" on it all, and my doctor says it's "OK".  Except, the more I eat, the more I dread the writing in the journal.  So, I procrastinate.  That is how we reach this point right here on Sunday night.  I had made a very large list of things I had to do today before I left.  Finally, I am reaching the last item: Journal Diet.  And, I'm tired, hungry, and have no clue what I have eaten over the last 3 days.  I think that it is important to note that I had a lot of dairy products.  Although I did not "explode" (i.e., go to the emergency room in severe pain...yet), I do just feel like "ick".  I think it is time to seriously consider decreasing dairy in the diet long-term.  I don't mean never, ever have ice cream.  Just not have ice cream twice a day.  Maybe once a month.  Maybe choose a chocolate chip cookie over ice cream; that doesn't seem so bad.

                                     Josie

The Numbers:  December 8, 2011.  Food:  Breakfast:  Honey Nut Chex, coconut milk, peppermint candy.  Lunch:  Venison, carrots, celery, pear, sweet potato, olive oil, sea salt, asparagus, Whole Foods French Bread, Land O' Lakes margarine.  Snack:  Mint Oreos.  Marshmellows.  Dinner:  pork, green pepper, onion, mushrooms, corn chips, rice, guacamole, spinach.  Dessert (ok, I totally just gave up here)  Sour cream cup cake (from the peppermint cheese cake, cake portion), frosting (whipping cream, margarine, white chocolate, vanilla), Whole Foods Havarti Dill cheese, Christmas cookies (with frosting), Smirnoff Blueberry Lemonade.
Medications:  pyridium TID, amitriptyline SID, Zyrtec SID, Prelief prior to evening binge, Cosamin, Free Fatty Acids
Pain:  In the morning, bladder and urethra at a 2-3.  At 4:30 pm, strong urge to urinate, with bladder and urethral pain at 5-6.  Jogged and did Yoga.  Then heating pad.  Pain decreased to 2-3.  It should be noted this all occurred prior to the dairy binge.

December 9, 2011.  Food:  Honey Nut Chex and coconut milk.  Mint Oreos.  This day is very vague.  I think I had a pear.  I'm sure I had some Whole Foods French bread and Land O' Lakes.  For lunch, I almost sure I Arnold's Honey Wheat bread, asparagus, sweet potato, olive oil, sea salt, pear.  Dinner was the Sunday School Christmas Party, and I had no intention of eating according to diet:  ham with pineapple, green bean casserole, carrots (look - I made an effort for 30 seconds!), cheese dip (with likely beef), Fritos, 5 layer cheese cake, crab roll up (cream cheese, Trader Joe's crab, red pepper, green onion, Mayo - I made these and it is good), "Death By Chocolate" (some pudding, coffee, whip cream, chocolate thing), peppermint fudge (the BEST!).  I'm sure there was more.  It was all good.  Oh yeah...COKE!
Medications:  pyridium TID, Zyrtec SID, amitriptyline SID, Prelief prior to binge (ha ha!, Cosamin, Free Fatty Acids.
Pain:  You know, I don't remember any.  I will just say "good day!"  I did not use the restroom once during the party.  I enjoyed myself...and forgot I was sick!  I was sure I would "pay for it" tomorrow.

December 10, 2011:  Food:  Breakfast:  Honey Nut Chex, coconut milk.  Peppermint Cheese Cake.  I'm sure mint Oreos, and Christmas cookies somewhere in there.  Lunch - peanut butter and Arnold's Honey Wheat bread, and Whole Foods white bread.  Then, I made donuts (I won a donut maker at the party!)  flour, egg, vanilla, sugar, sprinkles, powdered sugar, milk.  Snack:  coleslaw, 1 bite Bar B Que and 2 French Fries at the Christmas Festival.  Dinner:  pork, rice, corn chips, guacamole, spinach.  Dessert:  More cookies.  More cheesecake (I had to finish it...ugh!)
Medications:  pyridium TID, amitriptyline SID, Zyrtec SID, Cosamin, Free Fatty Acids.  Flexeril before bed.
Pain:  Mild vulvodynia, burning and cystitis/urethritis around 5pm.  TENS helped.  GI cramping; I'm sure it was the food.

December 11, 2011 (At church today.  Many people having food hangovers from the party 2 nights ago.  People eating the cheesecake for breakfast; I'm never making that thing again).
Food:  Trader Joe's Oatmeal cereal, coconut milk.  Mint Oreos.  Lunch: Arnold's Honey Wheat, Peanut butter, asparagus, pear.  Snack:  Trader Joe's pretzel bread, Trader Joe's spinach (with sour cream) dip, crab roll-ups.  Christmas cookies (I now plead with myself to end the dairy binging.  I feel like junk).  Dinner:  Brown rice, corn chips, spinach. Carrots.  Pear.  Oatmeal cereal and coconut milk for dessert.  Mint Oreo.
Medications:  pyridium TID, amitriptyline SID, Zytec SID, Cosamin, Free Fatty acids, Flexeril before bed.
Pain:  Off and on mild urethral burning and vulvodynia burning (3).

Thursday, December 8, 2011

Tis the Season

Ever since I dragged my husband out on Black Friday Midnight shopping, he has been complaining that it seems that no one is truly invested into the real meaning of Christmas.  This is from a man who maybe attends church with me twice a year, but I totally see his point.  When did it become accepted that you must buy for your child the #1 toy of the year?  I was a child during the Cabbage Patch craze.  They were expensive and people were fighting for them in the malls.  Somehow, Santa with all his magical power did not bring the Cabbage Patch kid to my house of Christmas morning.  I did get one 1-2 years later, and I was ok with this.  I was more than ok; I was quite pleased.  However, I was super confused why Santa was unable to bring me one, but could find one for my next door neighbor.  I wasn't upset or jealous.  Just confused by the "rules", especially since I knew for a fact that I was better behaved that that kid.  So, maybe this is really just my attack on Santa Clause and how he has commercialized this religious holiday.  If I can ever get healthy enough to make a child, that poor child is going to have it pretty rough around Christmas-time.  I guess he can sympathize with the dog, who never gets the table scraps he wants, because I am a vet.

Anyway, I thought I needed a way to cheer up my husband.  So, we invited our close friends, and their 4 year-old daughter, to our house for cooking marsh mellows on the outdoor fire pit we grabbed on Black Friday.  The lights were up, we had Christmas music playing, the girl was chasing the dog, there were Christmas cookies and a cheese plate.  It was lovely.  And, it did really start to feel like Christmas. 

            Until Next Time,
                   Josie

December 6, 2011  The Numbers:  Breakfast:  Wheat Chex, coconut milk.  Mint Oreos.  Lunch:  Jiff creamy Peanut Butter, Arnold's Honey Wheat Bread, Land o' Lakes margarine.  Pear.  Snack: Mint Oreos.  Dinner:  Pork, onion, green pepper, mushrooms, corn chips, spinach, guacamole, rice.  Dessert:  Christmas cookies and frosting (frosting has confectioner's sugar WalMart, milk, vanilla). 
Medications:  Pyridium TID, Zyrtec SID, amitripyline SID
Pain:  Some cystitis/urethritis in AM (3).  Used TENS.  All pain a 1 in the afternoon/evening.  Not a bad day.

December 7, 2011  The Numbers:  Breakfast:  Oatmeal.  Lunch:  Jiff creamy Peanut Butter, Arnold's Honey Wheat Bread, Land o' Lakes margarine.  I'm sure an mint Oreo cookie later.  Christmas cookies after lunch.  Dinner:  pork, green peppers, onion, mushrooms, corn chips, spinach, guacamole, rice.  Snack with friends, MANY marshmellows, Whole Food's French Bread.  Trader Joe's pretzel bread.
Medications:  Pyridium TID, Zyrtec SID, amitriptyline SID
Pain:  Yesterday AM 0-1.  Did start with some vulvodynia (rear end burning) mid-day, after lunch/Christmas cookies that continued into evening (3).  I have to wonder if this is a positive reaction?  Maybe to the milk in the icing of the Christmas cookies?

Tuesday, December 6, 2011

We can all laugh now, because everything is ok.

I received a call from a friend of mine Saturday afternoon.  We used to work together at the same clinic (she is a technician), until I left my job there to try my hand at relief work 10 months ago.  She loves chihuahuas.  She had left work Saturday afternoon, after hosting a Christmas party for the practice's clients, and she returned home to put her little elderly chihuahua outside.  Unfortunately, a hawk swooped down on the little dog (she is only 3 lbs) and tried to take off with her.  This is the part of the story when people start laughing.  I understand; I feel the same way.  People who are not fans of these little toy breeds call them Little Rats, and here is Mother Nature confirming your name.  Even though I no longer work for this practice, she called me to come in to treat her little dog, who was suffering from head trauma, secondary blindness, and was in hypovolemic shock.  It suddenly was not funny.  I worked for an hour and a half, and that little dog went home with her owner for a weekend of nursing care.  I received a few messages last night, the little girl is doing great and getting her vision back.  I told my husband, "The dog is ok.  You may laugh now."

This situation stirred up many emotions within me.  First, I realized how much, deep down inside, when I am not being abused by an employer/horrible schedule/etc. I love my job.  I need it to feel of value.  I want to work more, and this isn't about money.  Second, I was scared; trying to treat a critical friend's dog under the spotlight of your old employer - there was just a lot of pressure.  However, even though I was very scared, I did not become painful.  I think this is helpful to reinforce that all my bladder pain and vulvodynia is  not "in my head" or all stress induced.  Third, although I would never want my friend to pay me, I feel that my old employer/practice owner should have voiced something, at least a "Thank You", for me dropping in last night.  There are four doctors employed in that practice, and not one of them had to come in on their Saturday to work because of me.  I don't mean to be a jerk, but it does leave a sour taste in my mouth.  I guess this just reinforces the feeling that my efforts at that practice were never fully appreciated and that I had made a good decision to leave at the start of the year.

            Josie

The Numbers:  Yes, I have been very slack about blogging and recording.  For several days, I did jot down some good notes by hand.  I think I just wanted to feel normal and not sick for a while.  Here is the updated info...to the best of my knowledge.

December 1, 2011.  Food:  Breakfast- oatmeal, followed by Honey Nut Chex and coconut milk.  Lunch - venison, pear, carrots, celery, sea salt, olive oil.  Snack:  mint Oreos.  Dinner:  Honey Nut and Wheat Chex.  Wal-Mart White Bread.  Land o' Lakes margarine.
Medications:  Pro Sed in AM.  When became painful in afternoon, changed to Pyridium at 3pm and 11pm.  Amitriptyline SID, Zyrtec SID.  Cosamin BID
Pain:  0-2 cystitis/vulvodynia in am.  At 3pm, cysitis/urethritis at a 4 - used TENS, which helped.  At night, pain levels at 0-2, but colon cramping did start.

December 2, 2011.  Food:  Wheat Chex and coconut milk.  Lunch:  Venison, pear, carrots, celery, sea salt, olive oil.  Wal-Mart White bread, Land O' Lakes margarine.  Snack: mint Oreos, peppermints.  Dinner:  Orange Roughy, olive oil, sea salt, carrots, sweet potato.  Dessert:  mint Oreos, Wal-Mart chocolate chip cooie, Wal-Mart white bread, Land O'Lakes margarine.
Medications:  Pyridium TID, Zyrtec SID.  I forgot to refill my amitriptyline!
Pain:  0-2 everything in AM (worked food bank - no pain this time).  2-4 pm cystitis was a 2 and urethritis was a 3.  I am pretty sure I used TENS afterwards (this is where I hurt myself by not making better notes), and all were about a 2 from 6pm and onward.

December 3, 2011:  Food:  Breakfast:  Wheat Chex, coconut milk.  Snack (went to craft fair) funnel cake with powdered sugar (only a small amount).  Lunch:  venison, pear, carrots, celery, olive oil, sea salt, Wal-Mart white bread and Land O' Lakes margarine.  Snack:  mint Oreos and Walmart chocolate cookies.  Dinner:  Lamb, sweet potato, asparagus.  Dessert:  Christmas cookies (sugar, flour, eggs, vanilla, margarine), as I tried to make my mother's/grandmother's recipe and FAILED.  Not frosted yet.
Medication:  Pyridium TID, Zyrtec SID, amitripyline SID, flexeril that night.  Started Vitamin E.  Continued Cosamin BID
Pain:  0-2 all in AM (I place the 2 because we walked all through the craft fair and the urethritis and vulvodynia may have mildly started.  Urethritis about a 2-3 right before bed, so I took 1 flexeril. 

December 4, 2011:  Food:  Breakfast:  Wheat Chex and coconut milk.  Lunch: peanut butter sandwhich, Anorld's Honey Wheat Bread, carrots, pear.  Dinner:  brown rice, corn chips, guacamole.  Dessert:  mint Oreos.
Medications:  Pyridium TID, Zyrtec SID, amitriptyline SID, Cosamin BID, Vit E TID. 
Pain:  2 cystitis/vulvodynia/urethritis in AM, became a 3-4 for vulvodynia when when to get Christmas tree (walking) (about 2-3pm).  Mood a 7 (bad!).  Took nap, got up and exercised - very well improved.  Mood down to 3-4.  Pain down to 2. 

December 5, 2011:  Food:  Breakfast:  Wheat Chex and coconut milk.  Snack:  carrots.  Lunch - Arnold's Honey Wheat bread, Jiff peanut butter.  Oatmeal.  pear.  Snack - regular Oreos, and Soft Batch chocolate chip cookies.  Dinner:  Pork roast (with olive oil, onions, mushrooms, green pepper), corn chips, guacamole, spinach, rice.  Dessert - mint Oreos, peppermint.
Medications:  Pyridium TID, Zyrtec SID, amitriptyline SID, Cosamin BID, VIT E TID.
Pain:  2-3 cysitis/urethritis in AM.  weird abdominal palpation thing at PT.  By PM - all pain was 0-2.  Good day.

Wednesday, November 30, 2011

Sometimes, the AVMA makes me so frustrated...

I guess that's not a very nice title for tonight's blog.  Evidently, over Thanksgiving, Obama signed a bill that will remove the ban of horse slaughter for human consumption.  What frustrates me about this is that I first hear about this first from animal lovers freaking out over Facebook, when they do not have all of the information, and not from the AVMA (American Veterinary Medical Association).  These "articles" circulating on Facebook do not explain that since the ban on slaughter has been in place (5 years ago), horse owners have not been able to (or not choosing to) properly feed and care for their horses during this recession.  As a result, for five years, horses have been starving to death in people's dried up pastures or inhumanely shipped to Mexico for slaughter that may not be overseen by qualified people to ensure that the procedure is pain-free.  Anyway, back to my gripe by the AVMA, I had to dig through the Internet looking for the truth in this story, settling on an article from DVM Magazine.  At this time, the AVMA has still not made an official statement on this bill or notified its members of its occurrence, so we can at least provide education for our client.  Goodness!  Even PETA has posted a statement on this situation already!  The AVMA is always behind...and they wonder why the younger generation of veterinarians feel that they are out of touch.  I'm just stating that I wish I could hear about an issue like this FIRST from my professional association (whose opinion I would like to respect and serve as a guidance for how I may discuss this issue with clients) and NOT from social media.
Here is the article from DVM 360.  I usually do like reading DVM Magazine.
http://veterinarynews.dvm360.com/dvm/article/articleDetail.jsp?id=751022&pageID=1

I promise to be more cheery next time!
                  Josie

The Numbers:  November 29, 2011 - Breakfast:  oatmeal.  Lunch:  sweet potato, olive oil, sea salt, lamb, pear.  Snack #1 carrots.  Snacks #2 and 3 (about 1 pm) Oreos, peanut butter, land o' lakes butter, Arnold's Honey Wheat Toast.  Dinner:  Orange roughy, olive oil, sea salt, asparagus, pear.  Dessert - mint Oreos (I won't lie...I ate many).
Medication:  Prosed DS TID, amitriptyline SID, Zyrtec SID.
Pain:  0 in AM  Around 10:30 am, while feeling a little overwhelmed volunteering at the food pantry, cystitis (and maybe urethritis) increased to 3.  TENS in the afternoon and evening lowered it to 1-2.
Mood:  Not super giddy, but positive.  Not a bad day.  I'll take it.
(I think peanut butter, Arnold's honey wheat, and land o' lakes can probably be added as a cleared food.

November 30, 2011 - Breakfast:  Corn Chex and coconut milk.  Lunch;  Lamb, sweet potato, olive oil, pear, sea salt.  Snack #1 carrots.  Snack #2 mint Oreos (hey...might as well work on "clearing" this food also).  Snack #3 Arnold's wheat bread, land o lakes margarine and peanut butter.  Dinner:  Venison stew (venison, pear, carrots, celery, olive oil, sea salt), wheat roll.  Dessert:  mint oreos, corn chex, coconut milk.
Medications:  Prosed DS TID, amitriptyline SID, Zyrtec SID
Pain:  1-2 until 3pm.  At 3pm, became a 3, fluctuated between 2 and 3 all evening, with use of TENS.

Monday, November 28, 2011

I feel a bit "Vomity".

I have a "pet peeve".  I play Words With Friends commonly on Facebook.  I'm sure you've seen it; it's an extremely popular game.  It's like Scrabble, except that I get a good 48 hours to determine my next move.  And, the computer lets you know immediately (with no penalty) if the word you put in is invalid.  There's no challenging.  No stating to your opponent, "Why don't you use that word in a sentence?"  So, you can just mess around with your letters to see what looks right, and see if the computer accepts it.  Or, you can browse dictionary.com and see what word you can make with your available letters.  Do you think this is cheating?  I think there is this unwritten rule that you should know the word that you are placing on the board.  Anyway, as you can imagine, I am losing to someone who has not listed a single word that I know.  I was cool with this until I was just informed by the computer that the word, "Vomity" was just rejected.  Of course, I had it on a triple word square, with the "M" on a triple letter.  But, it's just a cool word; a word I seriously wanted to play.  Look!  I will even use it in a sentence:  I realized that it was unwise for me to eat a peanut butter sandwich before Zumba class when I began to feel vomity fifteen minutes into the class.  Poetry.
               Josie

The Numbers:  November 28, 2011.  Food:  Oatmeal, brown sugar.  Lunch:  Venison, pear, carrots, celery, sea salt, olive oil, sweet potato.  Snack - Carrots.  Second snack - Arnold's Honey Wheat Bread and peanut butter with Land O' Lakes margarine (3rd test date for this food) with Prelief first.  Dinner:  lamb, sweet potato, olive oil, sea salt, asparagus.
Medications:   Prosed DS TID, amitriptyline SID, Zyrtec SID.
Pain:  Level 2 with cystitis all day.  Vulvodynia and urethritis were a 0-2 all day until from 2-4 pm (when I was anxious at my doctor's office).  Considering a change from Prosed to Pyridium...I'm trying to decide what I think about that.  I was given the ok from Vitamin E and glucosamine/chondroitin - yes, I am going to treat my symptoms as if I were a cat.  I am that desperate.  But, I cannot deny that today was a good day.

Sunday, November 27, 2011

Insomnia!

Ha!  I did not think that I would post today.  That was before I had a bout of insomnia, and now I am awake at 12:30 in the morning.  So, I will post, but this will count as for the 27th of November, as I have not yet gone to bed.

So, I had a large decrease in pain today.  That was before the GI issues started (I will spare you the details).  Of course, I am now wondering if this is some allergic reaction to my food, medications, etc.   However, my husband doesn't seem to feel quite right himself, so I guess I'm going to have to think that this means that we had a little too much junk (i.e. cheesecake).  Which is funny.  I was going to straighten up today with my eating (Saturday morning was just so damn bad!), so we placed all the the cheesecake and carrot cake in the freezer, and I started cooking lamb again.

Sorry, there will be no creative writing today; I'm too "blah!"
         Josie
November 27th, 2011.  The Numbers:  Food- Breakfast - wheat chex and coconut milk.  Lunch - wheat chex and coconut milk (that stuff is like "crack" for me now) with Arnold's  Honey wheat toast with Land o' Lakes margarine and Jiff peanut butter (I'm hitting this one repeatedly to see if I can clear it from the "bad" list.  It will make traveling so much more convenient!) and Laffytaffy/Gobstoppers.  Snack - carrots.  Dinner-Lamb, sweet potato, sea salt, olive oil, asparagus.  Dessert - blueberry pie and some Gobstoppers/Laffytaffy (I have got to give this up - not worth testing it in a food trial).  Midnight snack - Life cereal and coconut milk (the wheat chex was gone).
Medications:  Prelief at lunch and dessert.  Prosed DS TID, amitriptyline SID, Zyrtec SID.  That's it; weird.
Pain:  Mild cystitis throughout the day (2, maybe 3 at the worst.  Manageable - just felt like I had to maybe go a little more often.  No pain.)  Same for vulvodynia pain.  Colitis starting at 11pm, with gas cramping in stomach and maybe some heart burn, after the snake I had to try to settle the stomach (Bad idea?).  Abdomen has seemed "bloated" all day.

Saturday, November 26, 2011

The Case of the Missing Clippers

When I graduated from veterinary school several years back, much was written in veterinary economics magazines, such as Veterinary Economics, about how veterinarians were not charging enough for their services and how our profession was basically recession-proof.  Well, at the end of 2011, I think we have all learned that this idea was wrong!  It seems that most clinics that I visit to work are being financial conscious and worry about the days when business is slow.

The clinic for which my friend Amy works is no different, even though it is located in a large city, with some pretty lucrative clientele (i.e. famous people).  Even so, about a month ago, the owner (and Amy's boss) started to get on to Amy and the rest of the staff about the waste of clinic supplies when business was not large enough to cover the expense.  (By the way, this happened at the clinic where I was working regularly about 2 years ago.  There were ideas such as, "Let's stop wasting paper towels!  Let's have a community hand towel near the sink where people wash their hands!".  Although, of course, this is done in my home, the idea of implementing this plan for this work place was, in my opinion, ludicrous.  There was a large amount of pressure from management for both doctor's and staff to work while sick and not take a day off.  So, as a result, some cold bug was always circulating around the clinic, and everyone was sick on a regular basis.  There was no way that I was going to share a hand towel with this group of people!  I honestly think it would cost the clinic more money in long-run with decreased productivity as a result of increased illness.)  On top of all of Amy's boss's concerns was the fact that a new $200 pair of clippers (used to remove hair on our patients that have skin wounds needing medication/surgical intervention) had vanished.  Someone at the clinic loudly vocalized that they had seen Dr. Amy use the clippers last, about a week ago.  Amy agreed that she did indeed use the clippers on the day mentioned to clip hair off a tumor she later surgically removed from a large dog.  However, Amy insisted that she did not remove the clippers from the treatment area. 

Amy's boss would not give the issue any rest.  Finally, Amy told him that if he was so concerned about her removing an expensive piece of equipment from the hospital without permission (which she would never do), then he should review the security camera footage of the treatment room.  This was deemed by all to be a good idea, so the entire staff filed away into the manager's office and loaded the video.  They find the day in question and watch as Amy and her technician use the clippers to prepare the patient for surgery on the treatment table.  Finished with clipping, Amy steps into the next room to collect the surgical scrub needed to aseptically prep the mass for surgery.  The clippers are placed on the table next to the patient.  Meanwhile, the technician turns her head away from the patient to have a conversation with another staff member walking through the room.  All staff members watch as the patient kicks the clippers off of the table and into the near by trash can placed below the table.  Amy returns with the scrub, and the patient is moved into the surgical suite.  Watching the video with his staff, the owner of the clinic fast-forwards the video to the end of the day...when a different technician arrives to collect the afternoon's trash and take it out to the dumpster. 

             Josie

The Numbers:  Food:  Breakfast - oatmeal.  Lunch - 3 bowls of Wheat Chex (don't ask.  Sometimes I just get a craving for this, and I had a coupon) with coconut milk (trying to avoid dairy as I was having a flare-up today and the cheese cake was suspect).  Snack- carrots, olive oil, sea salt.  Second snack - Wheat roll (yes, I know there is milk in this) and pumpkin bread (I was obviously in a "screw this" mood).  Dinner  - Arnold's honeywheat bread with Land o' Lakes margarine and Jiff crunchy peanut butter.
Medications:  Prosed DS TID, amitriptyline SID, Zyrtec SID, Vicodin this morning about 10 am, Flexeril at about 1pm.
Pain:  Woke up with an immediate level 5 urethral pain. Progressed within 2 hours to level 7-8 bladder pain.  That's when I took the Vicodin and started using a hot pad and tens.  By early afternoon, the bladder pain decreased, but a heavy urethral pain (6) remained with some burning vulvodynia (4).  We will pray that this will get better.  I know I will probably take a 1/2 Vicodin tonight.  I will be at my doctor's office in 2 days.  Mood was very bad this morning (level 8 of depression), and improved to about a level 4 tonight.

Friday, November 25, 2011

"They looked like zombies tearing apart human flesh!"

Oh, what a little change can do to alter your mood.  Yesterday, was Thanksgiving.  My husband and I were fortunate enough to be be invited to our friends' home for dinner.  This removed a lot of pressure on me to cook a meal when I wasn't feeling my best, and now we don't have those leftovers constantly tempting me to break my elimination diet.  Let's face it, I was told to try new things with food, and I was going to eat about everything available (in small amounts) on this day.  I knew I would go beyond cheating on the diet, and then wait to see if catastrophe occurred.  I decided my punishment would be that I would have to detail every single stinking ingredient in this blog.  I admit it; I have been putting it off.  To make things today even weirder, my husband took enough pity on me to take accompany me to midnight Black Friday.  Yeah, it started at 10pm at Wal-Mart, and it ended at 5am somewhere between J.C. Penny's and Anna's Linens.  At around 3am, we found groups of women tearing through a shoe display at Belk, which was when my husband made the above quote.  Somehow, I only used the restroom once this entire trip.  I'm not saying that I felt comfortable, but no accidents and I could walk/stand around large crowds for hours and be ok.  I think I should note that I feel proud of this ( as this was something I could not do in August, when I trip through the Harrah's casino ended with me sitting in tears).  Anyway, so this morning was actually around 12:30 pm today.  I joined the National Vulvodynia Association.  Well, I better stop procrastinating and run the numbers.
            Josie
http://www.nva.org/
The Numbers:  November 24, 2011.  Food:  Breakfast: oatmeal, pear (I think.  Yuck!   I hate it when I'm not sure).  Lunch:  venison, olive oil, sweet potato, sea salt, carrots, celery.  Snack:  Wheat roll from bread maker (regular bleached (evil) white flour, whole grain Whole Foods wheat flour, milk, sugar, regular salt, and yeast).   Thanksgiving dinner:  Turkey - injected unknown spices although it did not seem overwhelming, butter (probably margarine), garlic, salt pepper.  Sweet potato (ironic) with marshmellow creme, cinnamon, and sugar.  White rice.  Green bean casserole (Paula Dean's recipe, and it was awesome!)  fresh green beans, creme of mushroom soup, onion, chicken broth, garlic.  Mac and cheese: whole wheat noodles, mozzarella cheese, cheddar cheese, eggs, butter, milk.  Collards (not sure on the recipe, as my friend's grandmother makes it, and it is awesome.  I'm not even a true southerner, and I loved it.)  with ham hock and vinegar.  Trader Joe's rolls (I love Trader Joe's!).  My friend's mother's pumpkin bread (love it, love it love it!) - canned pumpkin, sugar, eggs, flour, salt, baking powder, baking soda, nutmeg, oil, vanilla extract, pecans.  Her mother's carrot cake (to die for!) - but don't know the recipe, but I'm sure there are carrots (duh!), cream cheese frosting, and possibly dried fruit.  My own blueberry pie (flour, salt, crisco, blue berries (duh, again), lemon, sugar, margarine).  Also, the peppermint cheese cake:  cream cheese, sugar, peppermint, Land o Lakes margarine, eggs, flour, sour cream, vanilla extract, Ducan Hines white cake, vegetable oil, Garabaldi white chocolate, whipping cream.  3am snack - pumpkin bread.
Medications:  Prosed DS TID, amitriptyline SID, flexeril around 1pm, 2 Advil around 5pm, Zyrtec SID.
Pain:  I would state definite urethral pain throughout the day, about a 4-5.  Vaginal burning.  Did not get worse at night; maybe even a little better. 

November 25, 2011:  (this should be easier)  Breakfast: oatmeal and pears (of this, I am sure!)  Lunch:  umm, yeah , the peppermint cheesecake and wheat roll from yesterday.  Snack:  Carrots.  Dinner: sweet potato, venison, olive oil, sea salt, carrots, celery, wheat roll.  Dessert will be blue berry pie.
Medications:  Prosed DS TID, amitriptyline SID, Zyrtec SID.  Likely a flexeril tonight.
Pain:  Off and on urethral pain, worst was a 4.  I can pretend it got worse after the cheesecake, but I was also sorting bills at the time, and we know stress can do it.

Wednesday, November 23, 2011

All By Myself...

Well, it's the day before Thanksgiving, and last night I had a vulvodynia flare up.  So, I wake up early today and call my doctor's office.  That was worth a whole lot of nothing.  They told me that I couldn't come in today.  And, that I should use my steroid topical cream.  My doctor has seemed to have forgotten that I had a suspected topical allergic reaction to that cream about 8 weeks ago and will not touch it since.  Since I was talking to the nurse and she didn't seem to understand why I had a problem with this direction, I gave up.  I just rescheduled myself for Monday.  And, went the day without underwear since I was staying home.  So gross; I hate this.  And, I hate being "put off" by my doctor's office.  It makes me feel like I am not worth much; that my severe pain is not worth being treated in a timely manner.  That my comfort is not important.  I feel sad.

Today was really not so bad.  My pain did not progress during the day, which is good.  I only needed 1/2 of a Vicodin last night, and I actually feel that things improved some today.  Also, I started a new knitting project and made a 5 layer peppermint cheese cake (see below):

Do you think I cheated on the diet?  Is it really cheating, if you are told to slowly try new things?  At least one of the answers to these questions is "yes!"
                  Here's hoping things are on the right track...
                   Josie

The Numbers:  Food:  Breakfast:  oatmeal, pear.  Lunch: orange roughy, olive oil, asparagus.  Mid-day snacks - mint Oreos (still working on that bag)  Is this cheating?  I'm so confused.  carrots.  Dinner:  Venison, olive oil, sea salt, carrots, celery, sweet potato.  Snack - Yesterday was the cream cheese portion of this 5 layer cake.  I did lick the beaters:  cream cheese, sugar, sour cream, vanilla, peppermint, butter, flour.  Today, was the sour cream soft cake version (eggs, white Duncan Hines cake mix, sugar, sour cream, vegetable oil) and icing (white chocolate, sugar, whipping cream, vanilla).  Do you think there are enough milk products to cause a flare?
Which brings me to tomorrow.  I've got to be realistic - I am about to piss all over this elimination diet.  It's Thanksgiving.  I suppose that if I don't flare, I will start drinking milk again.   I better bring the Prelief!
Medications:  Prosed DS TID, amitriptyline SID, Zyrtec SID, Vicodin 1/2 tablet.
Pain:  Bladder about a 2 all day.  Mid afternoon, I could feel it progressing to a 3, so I tried TENS for an hour.  Kinda creepy, but kinda cool.  It felt like a visceral organ massage.  Vulvodynia the worst was a 4 in the morning.  Decreased to a 2-3.  Attitude is better than it should be - not a bad day at all.

Tuesday, November 22, 2011

System Failure: Reboot

With all of my traveling with work and doctor's appointments, I have gotten to love books on CD.  No, my 2005 Toyota does not have an mp3 player; I think I bought my car one year too soon.  Out of the several books I have gone through this year, I am proudest of East of Eden by John Steinbeck (it was an Oprah Book Club recommended read).  The book I am the most ashamed of is The Host by Stephenie Meyer.  I still can't figure out if I am more ashamed that I checked this one out from the library or that I finished the whole 22 CDs of crap (a day of my life, gone forever).  The one that I did enjoy the most (this I feel somewhat ashamed about) is Stephen King's The Cell.

King can write some crap.  However, when he gets it right, it's really good.  The intensity and the character development can be superb.  But, King will always have two faults.  First, the ending will always suck.  The villain and the destruction of the villain is never quite as good as it should be.  Second, (and this is the one things that really makes my husband go crazy with frustration) he never seems to research his technology.  Somebody, get this guy a better editor.  Anyway, with The Cell, the ending is not great, but decent.  The same can be said for the technology.  My husband's job involves the transmission of cell phones.  He said the technology research was fair.  I'll take it.

Anyway, in the book, a bad signal is sent through everyone's cell phones to turn the phones' users into some crazed homicidal zombies.  Over time, a "worm" or something similar gets into the computer producing this signal and sends messages with errors.  The effects on later zombies are variable.  They are less homicidal and more...I don't know...I can't explain it.  Let's just say that our protagonists are always talking about the cell's signal producing a "system failure" in our brains.  They wonder if there would be a chance to "reboot" the brains and try to pull back all the old memories and functions from before.  That's how I feel about this elimination diet.  It's not going so hot.  Either I (on my first day on it) and severely allergic to the first item I touched (milk?  chocolate?  brown sugar?), or this experience is all hormonal and I will be driving myself crazy trying to find some stupid correlation that doesn't exist.  So, to summarize, my body has experienced a "system failure" and it's time to "reboot" back to lamb, sweet potatoes, etc.  It's just so hard when Thanksgiving is here, and I home-made blueberry pie in the oven as I type this.  For real.

           Josie

The Numbers:  I have delayed typing all of this because (1) I am busy, and (2) because I don't like the numbers.  I'm like this in business too.  I am aware that there is a money problem, I have a decent idea what the extent of the problem is and ideas on how to fix it, but I don't want to know that actual numbers of what's going on.  For instance, I know that when I receive a job cancellation that I lost a few hundred dollars, but I haven't recorded the actual number of days I have been canceled on.  I made a promise that in 2012 I will track this (oh, it will be painful!).  For now, I promise to better track my eating.

November 19, 2011:  Food:  Breakfast:  pear, sweet potato.  Lunch - my notes say "lamb", but I thought I was out of it.  Dinner:  olive oil, sea salt, asparagus, venison, carrots, celery.
Medications:  ProSed DS TID, amitriptyline SID, Zyrtec SID, 2 advil at 5:45 pm.
Pain:  Woke up great - no pain from 8:00am-9:30am.  Then, went to Yoga, when I started to feel icky.  Painful bladder of a 4 all day.

November 20, 2011:  Food:  Things got bad today.  Breakfast:  sweet potato.  Lunch:  venison, carrots, sea salt, olive oil, celery.  Snack - oat meal, brown sugar, pear, olive oil.  By now, the bladder pain is a 10.  I get pissed and eat all that I want for dinner (don't judge; life is hard) - pancakes (flour, eggs, milk, baking powder, margarine) with Heath pieces (it's as good as it sounds) and marshmellows.  Whole Foods french bread and asiago cheese.  Halloween candy - Laughy Taffy, Nerds, Gobstoppers.
Medications:  ProSed DS TID, amitriptyline SID, Zyrtec SID, 1:00pm 1 Flexeril and 2 Advil (helped for an hour).
Pain:  Bladder starts at 7 and builds to 10.  Mood/depression an 8.  Vulvodynia 2.  Mood and pain seems helped by food or time...improved by 9:30pm.  Overall, very bad day.

November 21, 2011 - Physical Therapy day:  Food:  Breakfast:  sweet potato, oatmeal, olive oil, brown sugar, pears.  Lunch:  venison, carrots, olive oil, sea salt, pears, celery.  Snack around 12:30 pm - Oreo cookie parfait frosty from Wendy's (it's good).  Later afternoon snack:  Whole Foods asiago cheese, French bread, and same candy as yesterday.  Dinner:  orange roughy, olive oil, asparagus.  After 5pm pain started, I lost all control again:  1/3 box of mint Oreo cookies, peanut butter on toast.
Medications:  Prosed DS TID, amitriptyline SID, Zyrtec SID.  9pm - Vicoden.  Prelief before frosty.
Pain:  Work up feeling so great compared to yesterday.  Bladder is at a 2.  This all changes at 5pm.  Post defecating vulvodynia becomes an immediate 5 and persists.  Mood/depression a 7.  A great day turns very bad.  Not to be gross, but I could tell I ovulated this morning, and it needs to be noted.

November 22, 2011 - Food:  Breakfast: Oatmeal, brown sugar.  Mid-morning snack - back to the mint Oreos.  Lunch: Oatmeal, brown sugar, mint Oreos.   Dinner:  Venison, carrots, sweet potato, olive oil, sea salt. Did start a cheese cake today, and I did taste the batter.  More on that tomorrow.
Medications:  ProSed DS TID, amiptripyline SID, Zyrtec SID, Flexeril around 12:30 pm after jogging and sex.  I'm sure I will take a Vicodin tonight - I am that uncomfortable.
Pain:  Today seems improved, I guess.  Bladder pain is a 2, but the vulvodynia with visible erythema is working a 7 or 8 now.  This started around 6pm, and no obvious trigger noted (unless we want to include Oreos).  Low estrogen?

Friday, November 18, 2011

Positive Reaction (AKA FAILED!)

Day 2 on the challenge portion of the food trial did not go well.  I flared; majorly.  And, the hard thing is I do not know if I flared up because of my hormone cycle or the food I added.  And, if it is the food, I'm going to guess that it wasn't the oatmeal.  I was really bummed.  Really, really bummed.  When  you finally get a day when you feel good, it's like this high.  Somehow you truly forget how bad the pain can be, and every time I am able to convince myself that I am healed and done with this.  Then, the pain shows up...and you're like, "Oh yeah....I remember this..."  Well, I almost gave up and binged, but then I remembered that this can be a positive test for learning how to beat this cystitis.  Instead of failing, perhaps I have gained a new piece of information.  So, instead of a fun blog today, I'm going to have to dwell on the illness.
               Josie

The Numbers:  11/18/2011:  I want to note, that I think this was starting to build up yesterday, prior to my challenge of the Milky Way.  I noted I could feel the vulvodynia start.  Plus, I'm in a stressful period right now. I am finishing work at My Current Practice (I guess I should just call it The Ghost Cat Practice), and am still waiting to finalize on my next job.  AND, as if that weren't enough, my parents invited themselves to my home yesterday (they will show up Saturday).  "Why is that stressful?" you ask.  Don't ask.  You don't want to know.  Lastly, in favor of the hormone theory, my abdomen started to swell last night, like when I first started the Lupron.

FoodBreakfast:  oatmeal and brown sugar.  Lunch:  Venison Stew (venison, carrots, celery, sea salt, olive oil) and oatmeal cookie mush (oatmeal, olive oil, pear, brown sugar).  The pain was starting, so for some reason, I accepted the continued challenge of a full sized Milky Way bar (dumbass!).  Snack: carrots/celery.  Dinner:  orange roughy, olive oil, sweet potato deep fried, asparagus.
Medications:  Prosed DS every 8 hours, amitriptyline SID, Advil (2) at 2:00pm, Prelief at dinner (2), Zyrtec SID.
Pain:  cystitis 3 in the morning.  Up to 4 at lunch.  From 3-5pm was a 2.  6-7pm a 5.  Improved after 2.5 mile evening run and maybe prelief....who knows.

Thursday, November 17, 2011

Restriction Removed!

Yea!  Today it was declared that I had passed the "elimination" portion of the diet.  Now, is the "challenge" portion.  This is where I get to eat what I want to figure out if I can stimulate my clinical signs to come back.  My doctor recommended that I be smart about this.  I thought I would go crazy and start binge eating, but I've worked hard on this for 4 weeks and I don't want to blow all that hard work by challenging a lot of ingredients at one time.  I'm sure all this won't matter in a few days, when Thanksgiving is here.

Today I added oatmeal and brown sugar.  And, a Milkyway "fun size" bar (why is smaller fun?  Like any kid would actually find a smaller candy bar to be fun).  And, probably the Three Musketeers bar.  Both of these from the freezer from Halloween.  Anyway, I am trying to make a limited oatmeal cookie.  It's oatmeal, olive oil, water, brown sugar, and pears.  Umm...it's not exactly baking up well.  Oh well.

  Josie

The Numbers:
November 16th - food:  sweet potato, pear, venison, orange roughy, carrots, celery, plum (the last one...and it was overly ripe.  I think we're done with plums for a while if I can't get good produce.
Medications - prosed DS TID, amitriptyline SID, Zyrtec SID
Pain - Great day yesterday.  Worked and no pain at all.  Mild vulvodynia in the evening - 2.

November 17th - food:  sweet potato, pear, lamb, carrots, venison, celery, oatmeal, brown sugar, milkyway fun size, three musketeers fun size
Medications - prosed DS, amitriptyline SID, Zyrtec SID
Pain - mild to moderate vulvodynia burning during the day - but I had a lot of driving/errands that that tenses me up.  2-4 today.

Tuesday, November 15, 2011

The Cleaning Bug

Ugh!  I got the urge to clean...at 10:00 pm.  Things like that are always so annoying.  I'm thinking right now that this cleaning is a good idea.  When I get up for work at 6:00 am, I won't be so happy with this idea.
        Josie

The Numbers:  Food:  sweet potato, pear, venison, celery, carrots, sea salt, olive oil, lamb, asparagus, plums.  Medications:  Prosed DS TID, amitriptyline SID, Zyrtec SID.  Pain:  Good in the morning.  4pm - 8pm vulvodynia with burning of about a 4. 

I've gotta get some new ingredients added to my diet.  Like oatmeal.

Monday, November 14, 2011

Beautiful Art

We have lived in our home maybe 4 years.  We still haven't finished painting it or even hanging pictures.  I guess spending money in that direction was never important to us.  Or, maybe I just never had the time.

Last weekend, Dave and I were randomly walking through Pier 1, when he finds a print of a painting that was on sale from $150 to $100.  I admit that I was surprised to find that Dave did pick something well that would compliment the bedroom.  It was almost worth buying it to celebrate that moment.  But, the fact remained that I would be spending $100 on a painting that meant nothing to me.  I grew up with my great-grandmother's oil paintings on our walls; it was just too weird to buy one.  Dave made a good point though; I had been waiting for a painting with meaning for over 4 years.

Today, I'm out of town for my physical therapy, and I stop at one of those discount pottery stores to take a break on the commute.  Low and behold, there is a painting to compliment the home...for $10.  It was so funny to me that I had to buy it.  There were a ton of them; this must be where hotel and hospital room prints go to die.  The artist had signed it; I wonder if he knew then how much (or how little) it would be sold for in the future.  It's really not so bad, as you can see.  I will get my husband to hang it up.  Then, we will trick people by telling them we spent a lot on it.
 I'm sure this is worth a million dollars.
           Josie

The Numbers:  November13, 2011:  Food:  sweet potato, pear, venison, olive oil, sea salt, carrots, celery, plum, orange roughy.  Ran out of asparagus, so none today.  Medications:  prosed DS TID, amitriptyline SID, Zyrtec SID, advil 1 time.  Pain:  Great in the morning, about non-existent.  Started around 3pm - urination.  Weakened at 5pm.  Seemed to recur shortly in the evening, but always no larger than a 4.

November 14, 2011:  Food:  sweet potato, pear, venison, carrots, celery, olive oil, sea salt.  Out of orange roughy - will make lamb tonight.  Out of asparagus.  Purposely removed plumbs to see if it would change anything for the better - I don't think it made a big difference.  Medications:  Prosed DS TID, amitriptyline SID, Zyrtec SID, advil SID.  Mild burning vulvodynia and bladder pain during the day, mild at a 2-3. Around 9pm - burning became a 6/7.

Saturday, November 12, 2011

My friend Amy has too good of a heart.  When I first met her in veterinary school, I was watching this young woman stop on the road walking on the way to class, pick up a roach, and carry it into the nearby safety of the grass.  It doesn't stop there.  Much to her current boss's dismay, she is always trying to save something.  If it is 2:00 am and she is on her way home from a night out, and there is an injured animal in the road, she will stop to save it.  And, by saving it, I mean she will put it in her car and bring it to the office.

One night, she was heading home from a late night, and she could see a squirrel dragging across the road in front of her.  She doesn't have a box in her car, but she does have an old blanket.  She lovingly wraps the injured creature into the blanket, and turns her car around for the 30 minute drive up to work.  Once inside she sets the squirrel down on the treatment table to open up the lock box to gather medication.  The little squirrel seems too injured to be saved (she figures it was likely hit by a car or attacked by another animal) but the least she can do is humanely euthanize it.  She pulls up the euthanasia solution, and that is when the trouble begins.

Amy is making her way back to the squirrel, when suddenly it springs up and starts to scamper from the treatment table to the nearby counters.  A mad dash ensues as Amy (in a nice dress and heals from an exciting night out) desperately tries to snag the wild creature that suddenly has a new grasp on life.  Finally, the squirrel finds an open door to pass into the ancient cabinets of the clinic and scrambles deep inside.

Amy spent about an hour that night pulling everything out of those cabinets, with no luck at finding the squirrel.  She eventually drove the 30 plus minutes back home.  I don't know if she left a note for the staff the next morning or not, but she did show up (on her day off) to return to the search.  I wish I could have seen the look on her boss's face, as she had to get a screw driver to remove some of the wooden paneling of the cabinets that the squirrel had wedged itself behind.  Once it hopped out, I think they just guided it for the outside door.  The squirrel would live after all.

             Until Next Time,
              Josie

The Numbers:  Food:  Sweet potato (I used olive oil and the sea salt to make "chips" today...it will have to do), pear, olive oil, sea salt, plum, asparagus, orange roughy, plums.  Dinner was brand new: Venison in the crock pot, carrots, celery.  Medications:  Prosed DS TID, amitriptyline SID, Zyrtec SID, Advil 1 time.  Pain:  Felt fabulous this morning.  Around 3pm, the standard bladder urgency/focal vulvodynia started up - maybe a 4.  Took an advil around 6, and it vanished...back to a 1-2.

Friday, November 11, 2011

I always wanted to be a vet!

Whenever I meet someone for the first time and tell them what I do-for-a-living, there runs a 50% chance that the person I am talking to will respond, "I always wanted to be a vet!"  Everyone always has this dreamy colored vision of us running around hugging puppies and kittens.  And, I won't lie, those are the best appointments!  I love them.  But, there is also this really dark side to the profession, that the AVMA (American Veterinary Medical Association) really doesn't encourage us to talk about.  There is the acting of having to euthanize a dog or cat because they were hit-by-a-car, and the owner has no money to try to save it.  Or, the client that demands that you solve their dog's severe allergy issue, but refuse every diagnostic test that you recommend.  Or, you watch a little old man leave the side door of your practice, alone, after you just euthanized his last companion on earth, a little old cat.  It will break your heart and stress you to your breaking point.  Studies have stated that veterinarians are 4 times more likely to commit suicide than any other professional group.  One study, I think from Australia, stated that something like one in three veterinarians suffer from some debilitating emotional disorder, like severe anxiety.  Let me tell you, I know a large number of veterinarians, and I think that the statistics fit.

My husband always says that he thanks God that I have my best friend Amy.  We met each other while suffering through veterinary school.  We struggled through a few exhausting blocks together during our senior rotations.  We understand the other's secret deep monsters that will appear when the clients are difficult, the hours are long, and we are just flat out of coping strategies.  Unfortunately, for me, she lives across the U.S. from me, so we only get to see each other once or twice a year.  Fortunately, for both of us, we carry cell phones and talk regularly.  And, my husband fully understands that no matter what is going on in our lives here, if she buzzes my cell phone twice in 5 minutes, I really need to answer it.  My husband doesn't mind, because he knows that it works both ways.

Amy has some of the best stories.  I will tell you one of them in my next post.
             Josie


The Numbers:  Food:  (ugh!  I spent 3 minutes in Publix today starting at a chocolate fudge cake!  I want, I want, I want!)  Lamb, sweet potato, pear, carrots, olive oil, asparagus, plum.  New food:  Sea salt.  Medications:  ProSed DS TID, amitriptyline SID, Zyrtec SID, Flexeril one time.  Still spotting, so no progesterone.  Pain:  I feel great (I just really, really, really want cake!  I feel like I am starving!).  I felt great enough to have wonderful sex this morning with my husband.  Yes, that detail is WAY too personal to add into a blog.  Unless, you suffer from vulvodynia...in which case, it becomes vitally important.  In fact, it is one of the major goals of treatment and something that I had to learn many months ago must be discussed about in my medical appointments.  Today would be a mile-stone; be happy for me!

Thursday, November 10, 2011

If I can cause the pain, maybe I can take it away.

Controlling my discomfort these past three days has been difficult.  It is not that I am medically doing so poorly.  On the contrary, I feel like maybe I am overall in a bit of an upswing.  However, the bank that I use for my veterinary relief business flat out changed my account and fee structure without my consent, and provided a simple one page letter to inform me of the change.  There was no explanation for the change provided.  My husband says it is the equivalent to stealing.  Really, it's just a royal pain in my ass to have to research another bank, buy new checks, transfer the money, etc, etc.  And, this stresses me.  The stress of course makes me unknowingly tighten those pelvic floor muscles, and the abdominal pain starts to return.  Plus, add to that the knowledge that I must have done a pretty poor job researching this bank when I selected it when I began.  I found out that by just simply typing "(my banks name) sucks", and a lot of angry websites pop up.  I will have to do better this second time around.  And, use this lesson as an opportunity to train all these abdominal and pelvic floor muscles to relax.

The other highlight of my day was unclogging the toilet at my church's Fellowship Hall.  It's a slow day.  I wish I had worked schedule today :)
                  Until Next Time,
                       Josie

The Numbers:  November 9, 2011.  Food:  lamb, sweet potato, pears, carrots, asparagus, olive oil, orange roughy (which Wikipedia has described as a large deep sea fish belonging to the slimehead family (Trachichthyidae)....Ew!), plums.  Medications:  Prosed DS only twice as I forgot one dose when work got really busy, amitriptyline SID, Zyrtec SID, progesterone.  Pain:  Low during the day, urinary and vulvodynia about a 1 to 3.  Evening had some increase - maybe a 4.

November 10, 2011.  Food:  lamb, sweet potato, pears, carrots, asparagus, olive oil.  No fish today - I get a little concerned about too much mercury.  Medications:  Prosed DS TID, amitriptyline SID, Zyrtec SID.  No progesterone, as I started spotting.  Pain:  It's there today - increased bladder/urethral pain, about a 4.  Ache in abdomen - maybe uterus - 4.  Focal vulvodynia pain at a 4 to 5.  Maybe there is a too much progesterone issue, and not a too low level issue?

Tuesday, November 8, 2011

A morgue in my freezer

I really and truly have a wonderful husband.  We had been married 7 years (hmm...I think that's right) before I developed vulvodynia/intense bladder pain 10 months ago.  He has since stressed and tried his best to find anyway to help me or ease my pain.  The worst part for him has been me telling him that there is nothing he can do.

Well, that has all changed!  He has jumped onto this elimination diet with both feet, without looking to see how far away the ground may be.  I came home from Yoga class yesterday to find our freezer and refrigerator absolutely filled with lamb, orange roughy, and venison.  Filled.  Like I am set for...I don't know what...maybe like 6 months.  Sheesh!  I really hope that I am not on this elimination diet 6 months from now.

So...does anyone know a good way to cook up venison?
           Josie

The Numbers:  November 7, 2011 - Food:  lamb, sweet potato, carrots, pears, plumbs, asparagus, orange roughy, and olive oil.  Medications:  Prosed DS TID, amitriptyline SID, Zyrtec, progesterone.  I had a large amount of difficulty emptying my bladder Monday morning, with the straining starting urethral and bladder pain.  Therefore, and I may regret this, I did not apply the Gelnique on this day.  Pain was a 5-8 by 11:00 am.  However, it greatly decreased, even disappeared, by 12:30 pm, after physical therapy and TENS.

November 8, 2011 - Food:  Food:  lamb, sweet potato, carrots, pears, plumbs, asparagus, orange roughy, and olive oil.  Medications:  Prosed DS TID, amitriptyline SID, Zyrtec, progesterone.  A little bit of trouble emptying at first morning urination, but it was non-painful.  Pain remained gone until about 4:00pm.  It returned like a bullet tearing through soft flesh at this time...while I was getting very very angry dealing with my business bank.  I'm trying to relax enough to see if I can get it to vanish.  It has improved.  Just more proof that stress and angry thoughts are detrimental to my health.

Sunday, November 6, 2011

Cyndi Lauper meets Communion

I was 5 years old when Cyndi Lauper's Time After Time was a big radio hit.  I remember my father and I singing it together in the car as he was driving me back from gymnastics class.  (As a side note, this was in 1984, so I was sitting up front on a bench seat with my seat belt on...certainly not in the back strapped to a car seat).  When I heard Girls Just Wanna Have Fun for the first time, I was sold.  I wanted to be everything like Cyndi Lauper.  Her album was titled "She's So Unusual" and she definitely dressed in her own style.  One thing that was prominent in her clothing was the use of patterned and textured tights, often fish net.  Of course, at this young age I was too young to wear this clothing (or listen to She Bop, I might add), but I never lost my love with those tights.  I never wore them as an adult, because their use seemed to be limited to sex shops and hard core punks.  Until this year, when I see them filling up every young women's clothing department.  Yes, they appear in normal fashion the year that I am diagnosed with vulvodynia, and therefore, unable to comfortably wear tights or pantyhose.

My Hats Off to WeLoveColors.com for introducing a large amount of funky tights, in a thigh-high option.  The link will show you the veterical striped thigh highs I purchased, and promptly wore to church today under a grey sweater dress.  Whether it was in a good or bad way (I'm still not quite sure at this point) they were noticed, as I did receive a few startled looks and surprised (but kind) comments.   Maybe I should have chosen a different Sunday; maybe I should have chose a Sunday when I would not be standing up at the alter to receive Communion.  But, no, I did not think that far ahead.

I'm at the front of the church, with a mindset fully focused on prayer, as I note our Reverend walking to each person with the bread in his hands, symbolizing The Body of Christ.  Suddenly, I note that increased salivation that I have been getting with my intense cravings starting in my mouth.  Here returns that familiar feeling that I am starving!  Let's face it, The Communion bread is never that good tasting...unless you are on an elimination diet where grains are strictly forbidden...where just a taste could ruin all the hard work of over a week and a half of eating just sweet potatoes and lamb.  So, in front of everyone, in my patterned tights, I turn back to the pews and do not take Communion.

Was this the right decision?  I have no clue.  It really does not matter to me if a parishioner decides to note that I refused Communion.  Our church is really very open minded, loving, and with comparatively less gossipy than of others I have visited (hence, why I love my church).  It is just that it seems like God would protect me from an allergic reaction from a Communion offering.  Was refusing Communion a show of my lack of faith of God to care for me?  I don't know.  But, I did pray to Him my concerns, and I'm sure he understands.  I know that he must know what I've been struggling with medically these past 10 months.

Here's that link.  My color was lavender.
http://www.welovecolors.com/Shop/VerticalStripedThighHighs.htm#
God Bless!
     Josie

The Numbers:  Food:  Today I add in olive oil with orange roughy (That's a deep water fish.  I did not know that until yesterday.  It's allowed on the Elimination Diet).  Breakfast was a fried in extra virgin olive oil sweet potato patty.  Lunch was fish, carrots, asparagus.  Dinner - lamb, sweet potato, plum, asparagus, carrots, pear (I was hungry).  Too weak to complete regular 2.75 mile job without walking.  Came inside shaky - had 2 spoonfuls of honey.
Medications:   Prosed DS TID, amitriptyline SID, Zytec SID, progesterone SID, gelnique SID
Pain - Urethral a 4 in the morning after 1st urination (likely secondary to difficulty emptying my bladder, but resolved by noon.  Vulvodynia noted when using Scrubbing Bubbles - sudden 4 and then disappeared. 
Facial buring - a 5 at 8pm.  Had changed to neutrogena because face very oily.  Will not use tomorrow.

Saturday, November 5, 2011

Craving Junk

I was initially supposed to work at My Regular Clinic today, but sadly I received a cancellation because business there had been so slow.  Us relief vets hate cancellations.  Basically, you have been committed to work a certain day, and then at the last minute you aren't working.  Then, you start thinking of other job offers you had for that day where you could have been making money, and you get angry.  And, I did have another job offer for this day.  That's twice now from this clinic and it is killing me.  Every place has been having cancellations; it's a major problem with the recession.  I suppose I need to think of a cancellation fee, but then I worry that no one would hire to me at all for fear of having to pay the cancellation fee.  I guess I stick with My Regular Clinic with a smile, because at a time when everyone seems to be cutting back on veterinary work in my area, this owner has decided to extend my time and overall, supply me with more days.  I feel blessed to even be working at all.


I'm sticking with the food trial and now I'm starting to crave foods that prior to the food trial I would totally avoid.  For example, I'm driving home from work last night and I see a Bojangles bulletin board with a large photo of a chicken biscuit in the center of it.  I have never deemed Bojangles to be exceptional (Chick-Fil-A is a whole other story), but all of sudden I wanted to be there so badly!  I could not imagine how I had not been weekly eating from the Bojangles menu.  I think I've eaten food from there 3 times total in my entire life.  I guess I just really, really, really want some trans-fat.
Other foods I have craved in the past 24 hours:
  • Dunkin Donuts plain cake donut
  • Dunkin Donuts chocolate cake donut
  • Homemade cheesecake with strawberry topping and a graham cracker crust
  • Graham crackers
  • Flavored coffee (I NEVER drink coffee...so weird)
  • Marshmellows
  • Backyard Burger - burger and fries
  • Mexican food!  Chalupa and tacos (I had to miss an outing with people from church last night due to this diet.  Ugh!)
  • Taco Bell Chalupa (Note:  I am not including this in the Mexican food category)
  • Oreo cookies - regular and vanilla
  • 3 Musketeers candy bar (currently frozen in my fridge)
  • Frosted Mini-Wheats cereal with milk
  • Fazoli fettucini alfredo and garlic bread stick (weird, because this is the worst Italian food out there)
  • Pizza Hut pizza
I guess it's worth noting that most of these are from cheap "fast food" places that heavily advertise.  Most are not that good.  And, all are easily accessible as soon as the food trial is over (even the cheesecake, which I can make myself).  I shall keep trucking along.
      Until Next Time,
      Josie

The numbers:  November 4, 2011- Food: Lamb, sweet potato, carrots, pear, plums, asparagus.  Medications:  Prosed DS TID, amitriptyline SID, Zyrtec SID, progesterone, gelnique.  I stopped the Vagifem, as I am told my estrogen levels are ok.  Pain - Pretty good until 10pm last night.  During the good time, vulvodynia and bladder both were a 2.  After 10pm bladder was a 3-4.  Felt weak during exercise, like I am not getting enough "sugars".  Also, concerned I may have too much trouble emptying my bladder.

November 5, 2011- Food: Lamb, sweet potato, carrots, pear, plums, asparagus.  Medications: Prosed DS TID, amitriptyline SID, Zyrtec SID, progesterone, gelnique.  Pain - vulvodynia at a 0-1.  Bladder/urethral - maybe a 2-3 all day.  Mood is good.  Hard to empty bladder - will lower gelnique dosage.  Feeling a little weak/light-headed today.  I will try to increase my protein intake (which is difficult, as nuts and beans are not permitted).

Thursday, November 3, 2011

Do I Smell Like Dead Meat?

I love to practice Yoga.  I'll be totally honest: I just love the positions and the exercise.  I carry minimal Zen within me.   The entire idea of concentrating for 1.5 hours on the breath alone constantly eludes me.  Recently, I grabbed a Groupon for 12 Yoga classes at a for real Yoga clinic for $24.  I mean the words "for real" because they chant and "ohm" and meditate.  Plus, they are strongly promoting a Vegan lifestyle.  Steve Ross (a famous Yoga Dude based in Los Angeles) says in his book Happy Yoga that when you are Vegan, you can catch a whiff of decay emanating off of the body of omnivores.  So, as I was receiving my complimentary neck and shoulder massage from the instructor, all I could wonder was, "Do I smell like dead baby sheep?"

The Numbers:  11/2/11 - Food - Lamb, carrots, pear, sweet potato.  Medications:  ProSed DS TID, amitriptyline SID, Vagifem, Zytec SID, gelnique 1/4 packet.  Pain - Outstanding from 8 am- 5pm.  Afternoon at work was stressful, and I felt the bladder pain start to return during the afternoon/evening, up to about a 5 and concerns with leaking of urine.  Vulvodynia pain was a 2.

11/3/11 - Food - Lamb, carrots, pear, sweet potato, asparagus, plums (I got to add these 2 items per my obgyn.  Asparagus seems gross without some seasoning.  The plums were so delicious!)  Medications: ProSed DS TID, amitriptyline SID, Zytec SID, gelnique 1/4 packet....Progesterone topical SID.  My progesterone levels were low when I had my most severe pain last Thursday.  All my prayers are on this being the fix...  Pain:  Bladder was a 3 today...some times less.  No vulvodynia.  Not a bad day.

Tuesday, November 1, 2011

The Biggest Loser - With No Effort

My drive back and forth to physical therapy takes about 3.5 hours each way.  I'm sure you must wonder why I travel so far, and I suppose that should be a topic at some point.  I'm just really not ready to discuss how I got to this point medically yet.  Just understand that I travel 3.5 hours each way once or twice a week.

Sometimes, I need to break up the drive just to give my mind (and rear end) a break.  About half way through my drive I pass through a major city.  So, I stopped at Forever 21.  I'm no where near 21 years old.  But, the clothes are plentiful, cheap, and I needed the break.  I find one of those sweater dresses everyone is wearing for $13 so I went to try it on.  If you ever get vulvodynia, you would understand why I have become such a dress wearer.  I put it on, and I can't believe how thin I look.  I am totally amazed...no wait...wait a minute.  Is that a slimming mirror?  Sure enough, the mirror is positioned directly in front of an extra wide door and slightly warped, both providing that slimming appearance.  I don't buy the dress; I'm note getting fooled by that one again.

Today I decide to weigh myself.  Well, junk.  I have lost about 5 lb since Sunday.  For real.  On that Lupron, my abdomen always had this constantly swollen appearance.  It's quite cruel really, especially if you are purposely making yourself infertile when what you really want is to become pregnant.  I'm sure that my complete lack of breads and sugars has not helped matters. Anyway, today I am regretting the lack of purchase of the sweater dress.

The doctor's office called to let me know that my hormone panel showed that I will be having a period soon and that the Lupron is gone.  Um...I kind of knew that.  I guess that part that saddened me the most was that I was suddenly hopeful that they were calling with some miraculous fix.  But no...

Until Tomorrow,
          Josie

The numbers:  Diet:  lamb (crock pot stew by my husband, who is desperately trying to provide me with variety), sweet potatoes, pear, carrots.  Medications:  Prosed DS TID, amitriptyline SID, Gelnique SID (1/4 packet), Zertec SID.  Pain levels: shockingly pretty good.  I mean, no where near perfect, but at this point, I will take what I can get.  Urinary - mostly a 3, maybe a 4 around 5pm and a 2 from noon to 3pm.  Vulvudynia, small flare up in the morning (3) but otherwise a 1. 

Monday, October 31, 2011

Sweet Potato: The New Super Glue

I was emptying out the dishwasher this evening, and it was pretty easy to notice that evidently sweet potato likes to stick to things and hang around long after the dishes are done.  We are one of those freaky groups of people too that actually wash all the dishes by hand prior to putting them into the dish washer.  I guess I always thought that the pre-wash was just to remove gross physical debris and the dish washer provided the sterilization, much like how we would prepare surgical instruments for the next surgery.  My husband has been noting for the past week that the fat from the lamb hangs around on plastic storage containers and leaves a greasy film on everything.  Well, the lamb option for my elimination diet may have to be changed soon anyway; Publix is all sold out of lamb due to us.  I feel like such a gross carnivore that only eats baby sheep.

While writing this, I could not help but notice how nice and fragrant by hands smell as I rest by chin on my hand.  Oh wait...that would be the Cascade dish detergent, which I am sure my super-allergic self is not supposed to have any contact.  Why would my dishes require a perfume?

I had my physical therapy session today.  My therapist's office is in this multi-story, multi-professional suite.  Every office section has a Halloween costume contest each year.  The therapy group I see dressed in the theme of Peter Pan, with my physical therapist dressing as Nana, the family dog.   The costume was good; too good.  I kept laughing every time I tried to talk to her, even when I would be trying to get all emotional about my pain levels.  I think this would be the first time that the dog every palpated the veterinarian!
Happy Halloween!
           Josie

The Numbers:  October 30, 2011:  Diet - lamb, sweet potato, pear, carrots.  Medications - Prosed DS every 8 hours, small amount gelnique SID, amitriptyline SID, Zertec SID.  Pain level - hey it wasn't perfect but I will take today.  I think I was about a 3 with urinary pain and a 2 on vulvodynia discomfort.  Wish to have many days like this one.  Lupron appears to be leaving the system, some spotting noted.  Good riddance. 

October 31, 2011:  Diet- lamb, sweet potato, pear, carrots.  Medications - Prosed DS every 8 hours, small amount gelnique SID, amitriptyline SID, Zertec SID, Vagifem.  Pain level - 10-12pm - 5 on bladder pain.  PT today and TENs seemed to help.  Vulvodynia discomfort about a 4 today.

Saturday, October 29, 2011

The Second Exam Room

I need some cheering up, so I'm going to tell one of my most recent favorite stories:

The curse of veterinary relief work is that when you start out that first year, you have to basically interview and negotiate for every stinking day of work.  Is your practice philosophy similar to the owner's?  Do you mesh well with the staff?  Do you communicate well to this client base?  I adore the meeting of each new staff member and the tour of each clinic.  But, during that first day, when I know I am being watched, I can become a little anxious.


Well, about three weeks ago, I was having one of those first days at My Current Clinic.  I was working extra hard to show each client that I was a friendly, compassionate, and skilled veterinarian .  I was finishing an examination of the dog in the Second Exam Room when I turned to exit into the practice's pharmacy.  To my left, I suddenly saw a small dark cat dart through the doorway of the exam room and into the pharmacy.  I gasped and took a few steps forward to follow after it.  Almost every veterinarian can tell you a story about the cat that escaped from the owner and found its way into some hole in wall of the old clinic building.  Or, worse yet, work that cat will find a way to work through the dropped ceiling tiles, into the attic, and out the roof to the outside world.  My sole intention was to grab this cat before it had any similar ideas.  However, after I had darted towards it, I realized there was nothing to chase.  I looked through the pharmacy - no cat.  I looked back in the Second Exam Room - fortunately the owner was busying herself with looking out that back window and not staring at the freak who just provided her dog with his rabies vaccine and chases imaginary cats.  I am mortified.  "I really need to learn to control my stress better," I chastise myself.  Fortunately, I see no staff present, and breathe a sigh of relief that my secret may actually remain safe with me.  I tell no one of the incident.


A couple of weeks later, this clinic experiences one of those crazy busy Fridays, when you feel like you spend the whole day running from one exam room to the other, never quite keeping up and never quite doing the kind of quality job that you intended to do when you first got out of bed that morning.  So, by the time we close down for the evening, I am exhausted and still need to complete examination notes for my afternoon patients while the technical staff is ready to leave.  Heidi kindly asks if I would like to borrow her key to the building, so I can stay late to finish the notes after the staff heads home.  That all around sounds like a very unwise option.  My committed belief in Murphy's Law would make tonight the night that a drawer full of cash disappeared or a bottle of ketamine walked away without explanation.  I decline the offer and decide that I would arrive in the next morning early with the opening staff to finish my notes.  This decided, we start to head out the back door, when Tabitha makes the joke that maybe I was unwilling to stay alone in the building because I am "afraid of the ghost."  I pause, "What ghost?"  Heidi then goes on to explain that people often hear or see an animal in the second examination room...sometimes a small dark cat.

Happy Halloween!
             Josie

The stats:  Food - water, lamb, carrots, sweet potato, and the pear for dinner which I simmered in water for 20 minutes prior to eating (tasty).  Hats off to my husband, who figured out how to determine a good cut of lamb, because it tastes so much better than the past few days.  The pain has been at a constant 6-8 today (poor me!), predominantly bladder pressure, urethra, and the characteristic vulvodynia "acid burn" in the evening.  Medications: Day 4 of methylprednisolone, amitriptyline SID, prosed DS TID, Zyrtec SID, and flexeril in the morning.  Still not convinced the flexeril worked...and may be the cause for the burn.  But at this point, I could blame anything on anything.  Started small amount of Gelnique over bladder.   I will pat myself on the back for handing out Halloween candy for 2 hours tonight at my church's Trunk or Treat and not eating one single piece.